Sun, Jan 31 | Virtual Charity Event - Myhre Syndrome

Sunday Serenity Series Charity Event - Myhre Syndrome

January 2020 Serenity Series Charity Event to support Myhre Syndrome!! Read on to understand why this is so important to the DW team!! Once you book your ticket for the event instructions on choosing your classes will be sent. You are welcome to attend any and all items throughout the day!!
Registration is Closed
Sunday Serenity Series Charity Event - Myhre Syndrome

Time & Location

Jan 31, 10:00 AM – 11:59 PM
Virtual Charity Event - Myhre Syndrome

About the Event

This Sunday Serenity Series Charity events will include posts throughout the day on Destination Wellness offerings, a video from the Wears family and a beautiful Healing Chakras meditation class..

Donations are recommended at a minimum of $25 and up to any unlimited amount you feel you can support.  Links in the event to contribute are set at specific amounts however, if you would like to donate a custom amount please contact us directly.  Attendance at the event is open to anyone interested in participating and any number of sessions may be attended with the same zoom link.

All proceeds will be donated directly to the Josh Wears Myhre Syndrome fund.

The Wears family has a special place in the hearts of us at DW for many reasons.  Ed Wears as a longtime industry colleague of the principal founder became a dear friend after she moved to England.  Within a year, Kate came into the picture and the couple, soon married and became dear friends.

Kate originally introduced Brenda to Tropic Skincare in 2017 and this was the basis of development for the idea around Destination Wellness.  Therefore, we at DW count Kate as "the reason" this beautiful community was created!

In May 2020 Ed and Kate's youngest son Josh was diagnosed with Myhre Syndrome.  As you can imagine, a diagnosis such as this can be devastating for the family. Ed and Kate have persevered, focused on their family and contribute significantly to supporting Josh through this.  We, at DW are so privileged to have to opportunity to contribute if even in the smallest way.

Access to this event is open to anyone, and donations starting at $25 are suggested.  Do what you can and remember, every little bit from a global community helps.

All proceeds from the event and any products sales conducted on this day will go directly to the Myhre Syndrome Foundation.

More information about Myhre Syndrome can be found here:  https://www.myhresyndrome.org/what-is-myhre-syndrome

Myhre syndrome is an extremely rare genetic disorder, with less than 200 confirmed cases globally. It is a progressive condition that develops over time as the SMAD4 gene works more than it should.

Myhre Syndrome can be viewed as a connective tissue disease, where all parts of the body can tighten and stiffen, which can cause life-threatening complications. There is currently no cure.

Every person who has Myhre Syndrome is slightly different, but common characteristics include:

•Short stature

•Characteristic facial features, such as small eyes, small mouth or prominent chin

•Intellectual disability and/or autism

•Hearing loss

•Limited joint mobility

•Problems with lungs and airways

•Problems with heart and blood vessels

•Thickened skin

Rare diseases, like Myhre Syndrome, desperately need funding so we can help understand more about the condition and work towards finding better treatments and one day a cure.

Every penny truly counts in changing the lives of Myhre children and adults as we race against time to treat the symptoms that can get more complex as each year passes.

We would l;ove to have you join us for any and/or all sessions for this event however, if you'd lik eto donate to the Wears family and are not interested in the sessions, direct donations to The Wears family fund can be made here: https://www.justgiving.com/fundraising/kate-wears

Schedule


  • 1 hour

    Healing Chakras Meditation with Katie Moran

    Zoom Meeting
Tickets
Price
Quantity
Total
  • All Access event
    $0
    $0
    0
    $0
  • Just One Class - Donation
    $5
    +$0.13 Service fee
    $5
    +$0.13 Service fee
    0
    $0
  • $25 Minimum Suggested Donation
    $25
    +$0.63 Service fee
    $25
    +$0.63 Service fee
    0
    $0
  • $50 Donation
    $50
    +$1.25 Service fee
    $50
    +$1.25 Service fee
    0
    $0
  • $100 Donation
    $100
    +$2.50 Service fee
    $100
    +$2.50 Service fee
    0
    $0
  • $250 Donation
    $250
    +$6.25 Service fee
    $250
    +$6.25 Service fee
    0
    $0
  • $500 Donation
    $500
    +$12.50 Service fee
    $500
    +$12.50 Service fee
    0
    $0
Total$0

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